Useful links. Useful links Palliative care or related charities

29.12.2023
Rare daughters-in-law can boast that they have an even and friendly relationship with their mother-in-law. Usually the exact opposite happens

Vladimir Kotov, pediatric orthopedist-traumatologist at the Center for Congenital Pathology of the Global Medical System Clinic (GMS Clinic, Moscow): “The girl developed scoliosis due to unsuccessful treatment for congenital dislocation of the hip joints. Due to bone dysplasia, the head of the right femur was destroyed. We examined Angelina and considered that the case was very advanced and complex, so we recommended that the girl’s parents contact foreign clinics. Our German colleagues will begin Angelina’s treatment with endoprosthetics of the right hip joint. I hope the treatment will be successful and the girl will be able to sit and walk normally.” →

Leading orthopedic technician at the Novavis Center for Prosthetics and Rehabilitation Wolfgang Gröpel (Waldenbuch, Germany): “Damir has congenital underdevelopment of both hands and feet. We are ready to make him bionic prosthetic hands, which almost completely repeat the movements of the hands, reading a person’s own electrical impulses. With their help, the boy will be able to grab objects and write quickly. Special silicone foot socks will also be made to fill the missing part of the foot. The boy will be able to take a shower and swim in the sea in them. A special attachment with fingers will be made for the multifunctional prosthesis of the right hand, simulating fine motor skills. Damir will be fully adapted to independent life.” →

Chronicles of the action to help Vadik Plotnikov

Program "Time". Chronicles of shares

28.01.2019
20:00

Residents of the Far East and Siberia collected 6.6 million rubles for Vadik.

8-800-250-75-25

25.01.2019
23:50

15.1 million rubles were collected for Vadik’s treatment. The promotion continues!

After the story in the “Time” program, new viewers of “First” and readers of Rusfond joined the campaign to help Vadik Plotnikov. By this time, 15,124,849 rubles have been collected, 245,799 SMS messages have been received.

From the latest mail:

Natalia, Moscow: "Everything will be fine! You will definitely be healthy, you just need to be patient a little longer.”

Michael, UK: “Of course, this is a drop in the bucket, but still. Don't worry, Vadik. Everything will be fine!"

Olga, Estonia: “I was very touched by the report from Channel One - Vadik is such a strong, courageous child, let everything be WELL for him!”

Anna, Chuvashia: "Get well soon".

Please accept our words of gratitude, dear friends!

You can send an SMS with the word WELCOME to the short number 5541 at any time.

from abroad .

If you have questions, comments, suggestions, call Rusfond at 8-800-250-75-25 (free call from Russia), write to . Thank you!

25.01.2019
21:00

Another 9.8 million rubles are missing to save Vadik. Join us!

The story of Vadik Plotnikov resonated with viewers of the evening news on Channel One. The boy has a rare genetic disease - chronic granulomatous disease; only bone marrow transplantation (BMT), the price of which is RUB 15,105,041, can save him. By this time, you, dear friends, have collected 5,274,800 rubles, which is 85,586 SMS.

In order for the boy to undergo a transplant at the Hadassah University Clinic (Jerusalem, Israel), another 9,830,241 rubles are needed. Join us!

Send an SMS with the word WELCOME to the short number 5541.

The cost of one SMS message is 75 rubles.

You can also use our electronic payment system by making a donation using a bank card or electronic cash, including from abroad. And owners of iPhones and Androids can send a donation through the mobile application. You can download it.

If you have questions, comments, suggestions, call Rusfond at 8-800-250-75-25 (free call from Russia), write to . Thank you!

25.01.2019
18:00

Rusfond on the First. History sixty-five

We expect a new story on the evening news and the Vremya program on Channel One. Today's hero is five-year-old Vadik Plotnikov from St. Petersburg. He has a rare genetic disease - primary immunodeficiency, chronic granulomatous disease. Vadik’s body is not able to resist infections - any cold is deadly for him. Doctors could not determine the child’s diagnosis for four years. They even treated me for tuberculosis, but nothing helped. The boy developed purulent infectious lesions of the skin and even internal organs, and the lymph nodes periodically became inflamed. When Vadik was finally diagnosed with a terrible diagnosis, his parents urgently began looking for doctors who could save their son. On the Internet, they found information about the Hadassah University Hospital (Jerusalem, Israel) and about Dr. Polina Stepensky, who successfully treats children with severe genetic diseases, and went there. Now the only chance for Vadik is a bone marrow transplant, which is ready to be performed at Hadassah. The cost of treatment is $226,459, which is 15,105,041 rubles. The large Plotnikov family does not have that kind of money.

Together we can save Vadik! Send an SMS with the word WELCOME to the short number 5541.

The cost of one SMS message is 75 rubles.

You can also use our electronic payment system by making a donation using a bank card or electronic cash, including from abroad. And owners of iPhones and Androids can send a donation through the mobile application. You can download it.

  • Hotline of the Vera Hospice Fund for palliative care issues - 8-800-700-84-36 (24 hours, free)
  • Doctor on duty at the children's hospice "House with a Lighthouse" (works in Moscow and the Moscow region) - 8 (495) 649-39-49
  • All-Russian hotline for psychological assistance to cancer patients and their loved ones “Clear Morning” - 8-800-100-01-91 (24 hours, free)
  • The unified 24-hour hotline of Roszdravnadzor for receiving citizens’ complaints about violations of the procedure for prescribing and dispensing painkillers is 8-800-550-99-03 (24 hours a day, free for all regions).
  • Hotline of the anti-cancer movement “We will defeat cancer” - 8-985-765-75-32 (the line is open from 08:00 to 13:00 Moscow time, on weekdays, free of charge)
  • Help hotline for people with ostomies from the public organization "ASTOM" - 8-800-250-23-43
  • ORBI Stroke Foundation Hotline - 8 800-707-52-29
  • Hotline of the interregional public movement "Movement against Cancer" 8-985-765-75-32, calls are accepted from Monday to Friday from 10:00 to 12:00 and from 15:00 to 18:00 (Moscow time)
  • Coordination center for palliative care in Moscow - 8( 499) 940-19-48
  • 24-hour telephone consultation with a doctor and psychologist of the Samara Hospice ANO, telephone numbers and specialists on duty change every week, see the schedule on the website

Educational sites

  • Association of Professional Members of Hospice Care
  • Oncobrain is an information portal about brain tumors (a project of the Konstantin Khabensky Foundation)
  • "Clear Morning" - patient support service website
  • Profilaktika.Media is an educational media project of the Cancer Prevention Foundation about evidence-based medicine and oncology
  • Just Ask is an online referral service for cancer patients and their loved ones. Just Ask connects anyone seeking treatment information with the cancer experts trusted by the Cancer Foundation. Telemedicine services are not provided (free of charge)
  • Oncology.ru
  • Hematology.ru - information resource for medical and pharmaceutical workers
  • “Movement Against Cancer” is an interregional social movement that provides legal support to patients and assistance in providing necessary medications
  • "AIDS.CENTER" is a popular science educational project of the Foundation for Assistance to People Living with HIV
  • "ASTOM" - an Internet portal for people with ostomies
  • “A Book to Help” is an information site and a charity series of books for families whose children have cancer
  • "Hello!" — website of the Association of Oncology Patients under the auspices of the Russian Society of Clinical Oncology (RUSSCO)
  • “Together against cancer” - educational website of the Foundation for Support of Anti-Cancer Organizations

Charities providing palliative care or related areas

For adults:

  • "Vera" - charitable foundation for hospice assistance
  • “Live Now” is a charitable foundation helping people with Amyotrophic Lateral Sclerosis and other neuromuscular diseases
  • "ORBI" - a fund fighting the problem of stroke
  • Altsrus" - an autonomous non-profit organization "Helping patients with Alzheimer's disease and their families"
  • “Old Age in Joy” is a charitable foundation for helping the elderly and disabled.
  • "Zhivoy" - fund for helping adults
  • AdVita
  • “Orthodoxy and Peace” is a fund for helping adults and children with various diseases, incl. with oncology
  • "Tradition"
  • “In word and deed” - psychological, socio-legal and material assistance to widows and families who have lost their breadwinner, St. Petersburg
  • “Life Goes On” - a charitable foundation to help families who have lost their breadwinner

For children:

  • "Children's Palliative" - ​​a charitable foundation for the development of palliative care
  • “Give Life” - palliative direction of the charitable foundation
  • Children's regional program of the Vera hospice charity fund
  • AdVita is a St. Petersburg charitable foundation helping children and adults with cancer
  • “Predaniye” is a fund for helping children and adults with various diseases and injuries.
  • “SMA Families” is a charitable foundation helping children and adults with spinal muscular atrophy (SMA) and other neuromuscular diseases and their families.
  • "MoyMio" - a charitable foundation to help children with Duchenne muscular dystrophy (DMD) and their families
  • Konstantin Khabensky Foundation - helping children with cancer and other serious brain diseases
  • "Oxygen" - a charitable foundation to help patients with cystic fibrosis
  • "Life Line" - a charitable foundation to help seriously ill children


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